Cure Mucolipidosis is a 501(c)(3) not-for-profit organization.
Our financial reporting is independently verified by Candid. We proudly display their Gold Seal for transparency.
Funding for the operating costs of the charity come from our Board of Directors and other funds tagged for operations.
All money raised for research goes to research.
Meet the Team
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Jackie James
President
Illinois, USA
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Jenny Noble
Vice President - Research/Admin
New Zealand
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Kevin Gates
Treasurer
USA
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Truls Roll
Head of European Operations
Norway
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Susan Kester
Family Support
USA
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Nadia Jack
Social Media/Communications
New Zealand
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Dan Peach
Research Lead
New Zealand
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Charlotte Gilbert
Fundraising Lead
USA
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Sue Weng
Data Collection & Analysis
USA
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John Delaney
Marketing and Website
Australia
Cure ML Professional Advisory Board
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Alessandra d'Azzo
St. Jude Children's Research Hospital, USA
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Ming Li
University of Michigan, USA
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A/Prof Enrico Moro
University of Padova, Italy
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Stephan Tiede
University Medical Center Hamburg - Eppendorf
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Julia Taravella
Founder of the Rare Trait Hope Fund