Jackie is the mother of Anna who has Mucolipidosis III alpha/beta.
Jackie began her journey into advocating for rare disease in 2012 when she joined the board of ISMRD. In 2015 she stepped up as the board president of ISMRD and spent several years working with the board advocating for Mucolipidosis and several other rare diseases.
Jackie has spent the last 14 years managing her family business and brings her business skills to the table to work with the board and accomplish the mission and vision that defines Cure Mucolipidosis.
Jackie is very much looking forward to seeing the science and research develop and ultimately see a cure/treatment for Mucolipidosis.